Looking for sarcoma specialists / patients with metastatic Solitary Fibrous Tumor

Hi everyone,

Can anyone point me to doctors or institutes specialised in Solitary Fibrous Tumor, or to patients who have been through this rare cancer?

My mum has been treated for four years with various chemotherapy treatments. Last month, her oncologist told her the disease is now progressing in the peritoneum, lymph nodes and liver, and that, given current knowledge and the treatments available in Belgium, no further standard therapeutic option remains.

We would welcome any guidance on specialised centres, second opinions or clinical trials, in Europe or abroad.

Thanks!
Greg